Covid-19: Call for action to save down syndrome community in Bangladesh

Down syndrome is not a disease or birth defect. It is, rather a blessing. Children born with an extra chromosome have unique talents that are not acknowledged. People with Down syndrome have ability and potentials which are not also recognized in most situations.  With proper care, assistance from the community and timely therapy and care- these children can be grow up as a normal human being.  But due to lack of awareness, negligence from family and exclusion from the community – these children cannot develop to their full potentials. 

Down syndrome society of Bangladesh (DSSB)- a national platform for people with down syndrome, is working across the country to ensure rights, social inclusion and employment opportunities for people with down syndrome in the country since its inception as a socially committed philanthropic organization. 

DSSB has tied-up with many renowned national and international organizations to broaden and enhance its activities for their development and well-being. It is now recognized as the country spokesperson of Down Syndrome International (DSi) and Inclusion International, UK by achieving affiliation of these two prominent organizations in the world. 

In the prevailing pandemic and lock-down situation all over the country, children, adults and people with Down syndrome are at highest risk and vulnerability due to their fragile health condition. At the international level many organizations are working intensively to ensure protection and livelihood for these people. But in our country, till now, no collaborative steps have been taken so far for their safeguarding people with down syndrome, either atthe  government or at private level. 

Communication and consultation with these families show that the low-income families of people with down syndrome are are in miserable condition at the family and community level due to financial hardship, lack of available food stuffs and mental illness. 

Our holy month of giving Ramadan has started already. Holy Ramadan teaches us the spirit of giving and assistance for the poor and distressed neighbors and community members. In this month of sacrifice and brotherhood, all kind hearted and rich people should come forward to help them for their survival in this critical time of the nation. Moreover, corporate bodies, national and international charities can play a vital role to alleviate their sufferings and struggles.  All should keep in mind that these people are also an integral part of the society and inclusive sustainable development of the country is not possible leaving them behind. 

A little bit of support, collaboration, and goodwill can make their daily life happy and comfortable. Spirit of holy Ramadan also teaches us to act for others. 

Let us all come forward and extend our kind support for this vulnerable community to ensure a better life for them so that they can actively contribute toward developing the country with their talents and skills. 

Sardar A Razzak is Chairman of Down Syndrome Society of Bangladesh