Doctors are yet to diagnose the mysterious disease afflicting Satkhira’s Muktamoni, an 11-year-old girl.
The illness has resulted in a malignant growth on her right arm, rendering her bedridden for the last two years. Her parents were on the verge of giving up due to the lack of answers and heavy medical expenses, when Prime Minister Sheikh Hasina took responsibility for Muktamoni’s treatment on Tuesday, granting fresh hope of recovery.
According to Dhaka Medical College Hospital (DMCH) Burn and Plastic Surgery unit Coordinator Dr Samant Lal Sen, Muktamoni is suffering from any of four skin conditions: Dermal Vascular Malformation, Lymphatic Malformation, Neurofibromatosis, and Congenital Hyperkeratosis.
Samant claimed that if the disease had been treated on time, her arm would not have deformed in such a severe manner.
“Her arm is functioning properly, but it will take us seven to ten days to prepare her for surgery, as she has anemia and malnutrition,” the doctor added. Blood flow in her body has reduced to such a serious degree that doctors are facing difficulties while taking blood samples from her for tests and diagnoses.
Previously, a paediatrician at a Khulna hospital had said it was a case of bone cancer. A second doctor at Queen’s Hospital in Jessore diagnosed her with a blood tumour (hemangioma). The treatment prescribed by both doctors only aggravated Muktamoni’s condition.
An eight-member medical board was formed on Tuesday regarding Muktamoni’s treatment.
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The committee monitored Muktamoni’s condition and gave possible opinions for her treatment on Wednesday.
Muktamoni was brought to Dhaka Medical College and Hospital on Monday night and admitted to the hospital’s Burn and Plastic Surgery Unit on Tuesday morning.
According to her father Ibrahim, a grocery shop owner of Kamarbaisa village in Sadar upazila, Muktamoni and her twin sister Hiramoni were a pair of healthy baby girls at birth. However, when Muktamoni was about 18-months-old, a wart appeared on her right arm. As the wart grew and began to hurt, her parents started to frequent local doctors for treatment.
Her arm has now grown abnormally large, weighing nearly as much as her body, and has festered with a painful infestation of parasitic worms.
Muktamoni’s blood group is A (+ve). Her doctors have urged for fresh blood from donors who have the same blood group.
Intended donors are requested to contact the nurses’ station at the sixth floor of DMCH Burn and Plastic Surgery unit.
This story was originally published in Bangla Tribune